During the 2nd Annual Review Meeting of AFCRN which took place in Victoria Falls, Zimbabwe, 21st -23rd January 2014, it was agreed to conduct a survey to determine some basic characteristics of member registries, to enquire into the nature of any links between registries and their respective Heath Authorities (national and/or local), and to review whether data from individual registries had been used in national or local cancer control planning.
A questionnaire was developed to collect data about the registries. It covered five areas:
- background,
- funding situation,
- data collection methods,
- registry output and
- use of data in cancer control.
The full publication, including the questionnaire, is available for download here.